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About Us
The Nemaline Myopathy Foundation was founded in June of 2001 and is a 501©(3) non-profit organization committed to:
- Promoting and supporting research into the causes, treatments, and cure for Nemaline Myopathy
- Providing support and education for those affected by Nemaline Myopathy
- Improving the quality of life of those diagnosed with Nemaline Myopathy
- Promoting public awareness and understanding of Nemaline Myopathy
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